Daily Archives: March 1, 2014


Ben Goldacre writes in The Guardian: I am embarrassed. Last week I wrote in support of the government’s plans to collect and share the medical records of all patients in the NHS, albeit with massive caveats. The research opportunities are huge, but we already knew that the implementation was chaotic, with poor public information, partly because the checks and balances on who gets access to data – and how – have not yet been devised or implemented. When you’re proposing to share our most private medical records, vague promises and an imaginary regulatory framework are not reassuring. Now it’s worse. On Monday, the Health and Social Care Information Centre admitted giving the insurance industry the coded hospital records of millions of patients, pseudonymised, but re-identifiable by anyone with malicious intent, as I explained last week. These were crunched by actuaries into tables showing the likelihood of death depending on various […]

Care.data is in chaos. It breaks my heart