Sade Laja writes in The Guardian: Data accessed under the secondary uses service, which is jointly delivered by the NHS Information Centre and Connecting for Health (CfH), for the NHS and its partners, is not always anonymised. The CfH states on its website that the service only provides access to “anonymous patient-based data” for purposes [...]
“The Moral Maze” on BBC Radio 4 asks: Do we have a moral duty to share our medical information with drug companies to develop treatments that could benefit all of mankind? The MP3 podcast can be downloaded here (until early January), and the programme is also available via the Listen Again page here.
James Brown writes in Pulse about responses to David Cameron’s announcement on the use of NHS patient records by industry: But the BMA raised concerns over patient confidentiality. Dr Vivienne Nathanson, head of science and ethics at the BMA said: ‘Whilst the BMA does believe the use of anonymised health data could benefit patients, we [...]
James Baker writes on the LibDem Voice web site: Despite the coalition’s initial promises it is business as usual for Whitehall data-sharing projects. What started under the program of ‘Transformational Government’ is now wrapped up in the language of ‘Open Data’. The new language is attractive – after all we all want public data to [...]
According to the BBC: Healthcare companies could be given access to anonymous NHS patient records and other NHS data under new plans. On Monday, Prime Minister David Cameron is due to unveil the plans intended to help the UK life sciences sector become a world leader, and give patients faster access to new treatments. Campaign [...]
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