Unfortunately the way I’d posted the URL on the comments thread meant that clicking on it appended a spurious “)”, which broke it. I’ve now edited the original post to fix this. My apologies.

I’m told that the BigOptOut letter will still work, because it tells your doctor to add the vital “93C3″ code to your record. However, I will get in touch with TheBigOptOut to see about getting it updated.

As for the connecting for health link, this is now unavailable.

I would suggest to Angela to go into the Summary Care Records website and following the instructions to opting out.

You can either use “The Big Opt Out” letter ( http://www.thebigoptout.org/optoutletter ) or download and print the “official” NHS form ( http://www.connectingforhealth.nhs.uk/systemsandservices/scr/documents/optout.pdf ). The actual form is on page 3 of the NHS leaflet.

I have phoned the no. given on the letter we received and requested an optout form which they have promised to send. In fact having later gone into Healthspace website there is a form which can be run off for this purpose.

What is annoying that we have already made our wishes known and now we have to repeat the procedure.

Just a further point, when I asked the gentleman if this was the same as the Spine, he had no idea what I was talking about.

If some people wish to look into this yet again, I strongly advise them to visit the website and see the entire prolonged procedure. Giving private details to a complete stranger, and in one area an applicant was told to go to a local Boots chemist.

This shambles is bad enough, what happens if you are an elderly person and not able to use or access a computer does that mean you are going to be considered as ‘not existing’. It is bad enough the very poor care that the elderly are receiving.

There are some very subversive elements to this process which I find totally unacceptable.

Also, wondered if a new template letter might be available on this site or write our own?
thanks, Angela